Union Calendar No. 446
116th CONGRESS 2d Session |
[Report No. 116–546]
To amend the Public Health Service Act with respect to the collection and availability of health data with respect to Indian Tribes, and for other purposes.
August 7, 2020
Mr. Gianforte (for himself, Mr. Luján, Mrs. Rodgers of Washington, Mr. Mullin, Mr. O'Halleran, and Mr. Ruiz) introduced the following bill; which was referred to the Committee on Energy and Commerce
September 29, 2020
Additional sponsor: Mr. Armstrong
September 29, 2020
Reported with an amendment; committed to the Committee of the Whole House on the State of the Union and ordered to be printed
[Strike out all after the enacting clause and insert the part printed in italic]
[For text of introduced bill, see copy of bill as introduced on August 7, 2020]
To amend the Public Health Service Act with respect to the collection and availability of health data with respect to Indian Tribes, and for other purposes.
Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,
SEC. 2. Collection and availability of health data with respect to Indian Tribes.
(a) Data collection.—Section 3101(a)(1) of the Public Health Service Act (42 U.S.C. 300kk(a)(1)) is amended—
(b) Data reporting and dissemination.—Section 3101(c) of the Public Health Service Act (42 U.S.C. 300kk(c)) is amended—
(c) Protection and sharing of data.—Section 3101(e) of the Public Health Service Act (42 U.S.C. 300kk(e)) is amended by adding at the end the following new paragraphs:
“(3) DATA SHARING STRATEGY.—With respect to data access for Tribal epidemiology centers and Tribes, the Secretary shall create a data sharing strategy that takes into consideration recommendations by the Secretary’s Tribal Advisory Committee for—
“(4) TRIBAL PUBLIC HEALTH AUTHORITY.—
“(A) AVAILABILITY.—Beginning not later than 180 days after the date of the enactment of the Tribal Health Data Improvement Act of 2020, the Secretary shall make available to the entities listed in subparagraph (B) all data that is collected pursuant to this title with respect to health care and public health surveillance programs and activities, including such programs and activities that are federally supported or conducted, so long as—
(d) Technical updates.—Section 3101 of the Public Health Service Act (42 U.S.C. 300kk) is amended—
(e) Definitions.—After executing the amendments made by subsection (d), section 3101 of the Public Health Service Act (42 U.S.C. 300kk) is amended by inserting after subsection (f) the following new subsection:
“(g) Definitions.—In this section:
“(1) The term ‘epidemiology center’ means an epidemiology center established under section 214 of the Indian Health Care Improvement Act, including such Tribal epidemiology centers serving Indian Tribes regionally and any Tribal epidemiology center serving Urban Indian organizations nationally.
“(2) The term ‘Indian Tribe’ has the meaning given to the term ‘Indian tribe’ in section 4 of the Indian Self-Determination and Education Assistance Act.
(f) Technical correction.—Section 3101(b) of the Public Health Service Act (42 U.S.C. 300kk(b)) is amended by striking “Data analysis.—” and all that follows through “For each federally” and inserting “Data analysis.—For each federally”.
SEC. 3. Improving health statistics reporting with respect to Indian Tribes.
(a) Technical aid to States and localities.—Section 306(d) of the Public Health Service Act (42 U.S.C. 242k(d)) is amended by inserting “, Indian Tribes, Tribal organizations, and epidemiology centers” after “jurisdictions”.
(b) Cooperative health statistics system.—Section 306(e)(3) of the Public Health Service Act (42 U.S.C. 242k(e)(3)) is amended by inserting “, Indian Tribes, Tribal organizations, and epidemiology centers” after “health agencies”.
(c) Federal-State-Tribal cooperation.—Section 306(f) of the Public Health Service Act (42 U.S.C. 242k(f)) is amended—
(d) Registration area records.—Section 306(h)(1) of the Public Health Service Act (42 U.S.C. 242k(h)(1)) is amended—
(e) National Committee on Vital and Health Statistics.—Section 306(k) of the Public Health Service Act (42 U.S.C. 242k(k)) is amended—
(f) Grants for assembly and analysis of data on ethnic and racial populations.—Section 306(m)(4) of the Public Health Service Act (42 U.S.C. 242k(m)(4)) is amended—
(2) by amending subparagraph (B) to read as follows:
“(B) In carrying out subparagraph (A), with respect to American Indians and Alaska Natives, the Secretary shall—
“(i) consult with Indian Tribes, Tribal organizations, the Tribal Technical Advisory Group of the Centers for Medicare & Medicaid Services maintained under section 5006(e) of the American Recovery and Reinvestment Act of 2009, and the Tribal Advisory Committee established by the Centers for Disease Control and Prevention, in coordination with epidemiology centers, to develop guidelines for State and local health agencies to improve the quality and accuracy of data with respect to the birth and death records of American Indians and Alaska Natives;
“(ii) confer with Urban Indian organizations to develop guidelines for State and local health agencies to improve the quality and accuracy of data with respect to the birth and death records of American Indians and Alaska Natives;
“(iii) enter into cooperative agreements with Indian Tribes, Tribal organizations, Urban Indian organizations, and epidemiology centers to address misclassification and undersampling of American Indians and Alaska Natives with respect to—
“(II) health care and public health surveillance systems, including, but not limited to, data with respect to chronic and infectious diseases, unintentional injuries, environmental health, child and adolescent health, maternal health and mortality, foodborne and waterborne illness, reproductive health, and any other notifiable disease or condition;
“(iv) encourage States to enter into data sharing agreements with Indian Tribes, Tribal organizations, and epidemiology centers to improve the quality and accuracy of public health data; and
“(v) not later than 180 days after the date of enactment of the Tribal Health Data Improvement Act of 2020, and biennially thereafter, issue a report on the following:
“(I) Which States have data sharing agreements with Indian Tribes, Tribal organizations, Urban Indian organizations, and Tribal epidemiology centers to improve the quality and accuracy of health data.
“(II) What the Centers for Disease Control and Prevention is doing to encourage States to enter into data sharing agreements with Indian Tribes, Tribal organizations, Urban Indian organizations, and Tribal epidemiology centers to improve the quality and accuracy of health data.
(g) Definitions.—Section 306 of the Public Health Service Act (42 U.S.C. 242k) is amended—
(2) by inserting after subsection (m) the following:
“(n) In this section:
“(1) The term ‘epidemiology center’ means an epidemiology center established under section 214 of the Indian Health Care Improvement Act, including such Tribal epidemiology centers serving Indian Tribes regionally and any Tribal epidemiology center serving Urban Indian organizations nationally.
“(2) The term ‘Indian Tribe’ has the meaning given to the term ‘Indian tribe’ in section 4 of the Indian Self-Determination and Education Assistance Act.
Union Calendar No. 446 | |||||
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[Report No. 116–546] | |||||
A BILL | |||||
To amend the Public Health Service Act with respect to the collection and availability of health data with respect to Indian Tribes, and for other purposes. | |||||
September 29, 2020 | |||||
Reported with an amendment; committed to the Committee of the Whole House on the State of the Union and ordered to be printed |