In the House of Representatives, U. S.,
December 10, 2020.
Resolved, That the bill from the Senate (S. 1130) entitled βAn Act to amend the Public Health Service Act to improve the health of children and help better understand and enhance awareness about unexpected sudden death in early life.β, do pass with the following
AMENDMENT:
SEC. 2. Amendment to the Public Health Service Act.
Part B of title XI of the Public Health Service Act (42 U.S.C. 241 et seq.) is amendedβ
(1) in the part heading, by striking βSudden infant death syndromeβ and inserting βSudden unexpected infant death, sudden infant death syndrome, and sudden unexpected death in childhoodβ; and
(2) by inserting before section 1122 the following:
βSEC. 1121. Addressing sudden unexpected infant death and sudden unexpected death in childhood.
β(a) In general.βThe Secretary may develop, support, or maintain programs or activities to address sudden unexpected infant death and sudden unexpected death in childhood, including byβ
β(1) continuing to support the Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry of the Centers for Disease Control and Prevention and other fatality case reporting systems that include data pertaining to sudden unexpected infant death and sudden unexpected death in childhood, as appropriate, including such systems supported by the Health Resources and Services Administration, in order toβ
β(A) increase the number of States and jurisdictions participating in such registries or systems; and
β(B) improve the utility of such registries or systems, which may includeβ
β(2) awarding grants or cooperative agreements to States, Indian Tribes, and Tribal organizations for purposes ofβ
β(A) supporting fetal and infant mortality and child death review programs for sudden unexpected infant death and sudden unexpected death in childhood, including by establishing such programs at the local level;
β(B) improving data collection related to sudden unexpected infant death and sudden unexpected death in childhood, including byβ
β(C) identifying, developing, and implementing best practices to reduce or prevent sudden unexpected infant death and sudden unexpected death in childhood, including practices to reduce sleep-related infant deaths;
β(D) increasing the voluntary inclusion, in registries established for the purpose of conducting research on sudden unexpected infant death and sudden unexpected death in childhood, of samples of tissues or genetic materials from autopsies that have been collected pursuant to Federal or State law and for which the parent or guardian has provided informed consent for inclusion in such registries;
β(E) disseminating information and materials to health care professionals and the public on risk factors that contribute to sudden unexpected infant death and sudden unexpected death in childhood, which may include information on risk factors that contribute to sleep-related sudden unexpected infant death or sudden unexpected death in childhood; or
β(b) Application.βTo be eligible to receive a grant or cooperative agreement under subsection (a)(2), a State, Indian Tribe, or Tribal organization shall submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require, including information on how such State will ensure activities conducted under this section are coordinated with other federally-funded programs to reduce infant and child mortality, as appropriate.
β(c) Technical assistance.βThe Secretary shall provide technical assistance to States, Tribes, and Tribal organizations receiving a grant or cooperative agreement under subsection (a)(2) for purposes of carrying out the program in accordance with this section.
β(d) Reporting forms.β
β(1) IN GENERAL.βThe Secretary shall, as appropriate, encourage the use of sudden unexpected infant death and sudden unexpected death in childhood reporting forms developed in collaboration with the Centers for Disease Control and Prevention to improve the quality of data submitted to the Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry, and other fatality case reporting systems that include data pertaining to sudden unexpected infant death and sudden unexpected death in childhood.
β(2) UPDATE OF FORMS.βThe Secretary shall assess whether updates are needed to the sudden unexpected infant death investigation reporting form used by the Centers for Disease Control and Prevention in order to improve the use of such form with other fatality case reporting systems supported by the Department of Health and Human Services, and shall make such updates as appropriate.
β(e) Definitions.βIn this section:
β(1) SUDDEN INFANT DEATH SYNDROME.βThe term βsudden infant death syndromeβ means a sudden unexpected infant death that remains unexplained after a thorough case investigation.
β(2) SUDDEN UNEXPECTED INFANT DEATH.βThe term βsudden unexpected infant deathβ means the sudden death of an infant under 1 year of age that when first discovered did not have an obvious cause. Such term includes such deaths that are explained, as well as deaths that remain unexplained (which are known as sudden infant death syndrome).
β(3) SUDDEN UNEXPECTED DEATH IN CHILDHOOD.βThe term βsudden unexpected death in childhoodβ means the sudden death of a child who is at least 1 year of age but not more than 17 years of age that, when first discovered, did not have an obvious cause. Such term includes such deaths that are explained, as well as deaths that remain unexplained (which are known as sudden unexplained death in childhood).
(a) In general.βNot later than 2 years after the date of enactment of this Act and biennially thereafter, the Secretary of Health and Human Services shall submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives a report that contains, with respect to the reporting periodβ
(1) information regarding the incidence and number of sudden unexpected infant death and sudden unexpected death in childhood (including the number of such infant and child deaths that remain unexplained after investigation), including, to the extent practicableβ
Attest:
Clerk.
| |||||
AMENDMENT | |||||